Don't know ya, but that means little when I hear something such as this. I will certainly be puttin' your child in my prayers as well as the rest of my family. I have two young children so I can somewhat sympathize with the terrible feelings you must be having. I would make damn sure the diagnosis is correct, and you might even want to think about getting a 2nd opinion. It can't hurt, especially if you have health insurance which I pray you do.
Lots of wonderful children hospitals across the country, and I would certainly look into finding one if the demographics are feasible. Once the doctors have specifically diagnosed the disease, I would start my research by surfing the world wide web. In a few months, you should know just as much as your doctor, so you'll know what you and your wife are up against. Become an expert in your child's disease. Become as educated as possible so you'll know what to expect through this whole process.
I can think of nothing worse than something happening to one of my children, and I can't imagine what you all are going through during the holiday season. The odds are stacked in your favor, and you all should think positively about the difficult road you're gonna go down. I'm certain everything will work out in the end, and I will certainly put your child in my prayers....