Hi
You haven't heard much from me lately. Between work and hleping out with Kathy... trips to doctors and hospitals there just hasn't been much time. Besides talking about her illness (leukemia) became so grueling and energy consuming that I just sort of clammed up about it.
Now.. she has completed three chemos and will be facing a bone marrow transplant at City of Hope at the Phoenix satellite the first week of May. This will require a one month hospitalization and then three months of house confinement.
Since November Kathy has been in the hospital in total isolation half the time... at three and four week stretches. About 45 days total.
We would like to take a quick vacation prior to the bone marrow transplant. We have 4-11 days. The budget is 3-5 thousand. I would like to limit our consideration to the Western Hemisphere including Alaska and Hawaii. Also, I prefer to be near water and we need to stay at a relatively low elevation.
Where would you go?
What I am seriously considering is Alaska, Hawaii and the Carribean.
Any ideas?
Any feedback would be appreciated.
I am including her last e mail as a new "update"
Thanks
AzRusty
Randy
4/13/02
Hi Everyone,
Well... I've been out of the hospital since Thursday, but spent all day Friday at Good Samaritan. Randy dropped me off at 8:00 A.M. and I was ready to be picked up at 7:00 P.M . What a long day. Friday was a "Hurry up and wait... Wait... WAIT" day. They had everything planned, appointments made and nothing went as planned. I was scheduled to go into surgery to have a "Hickman" put in at 10:00 A.M., but after my labs came back, they decided that my platelets were too low and they were going to have to transfuse me before they could do any cutting. After waiting for three hours for the blood bank to get the platelets in, and 1/2 hour to get them into me, they had to check my platelet count again before they could take me to surgery. After waiting for an hour for the lab to get my count we were able to get into surgery.
I went back this AM to have more labs taken. My white count was still too low to harvest stem cells, so they are going to wait and do it on Monday. I guess I get tomorrow off except for having to go to Del Webb Hopsital at 7:30 A.M. to get a Neupogen shot. They will continue to have me come in daily until they get the amount of stems cells that they want. Freezing and storing them can kill off some/all/many leukemic cells, if there are any present. Hopefully they will kill them ALL off and when I have the bone marrow transplant they will not be transplanting leukemic cells back into me. I will get a schedule for the actual bone marrow transplant. Right now, all we know is that they want to give me plenty of time to recover from my last chemo and harvest the stem cells.
I know you remember what a gorgeous rose garden I had out here. At one time I had over 100 roses that my Dad brought me. With the days and hours we have been working for years now, my beautiful rose garden is nothing except dry and dead patches of Bermuda grass. Everytime I'd walk outside I'd get upset, almost sick to my stomach seeing another dead or dying rose bush with weeds all around. While I was in the hospital this last time, Randy made arrangements with John next door to have 50 rose bushes planted!!! When we got home this afternoon, they were all planted! No... these will never replace the ones that my Dad gave me, but they will be every bit as gorgeous as the ones he brought me. What a nice husband! I need to let go of the past and focus on the present.
Randy knew I had a major problem with the hospital food so he had dinner with me almost every night while I was in the hospital. Some nights we had Kentucky Fried Chicken and another night it could be pizza, which was just fine with me. <oink> I finally learned to NOT eat anything that was cooked there at the hospital. I'd have toasted bagel/English Muffin for breakfast, a grilled cheese sandwich for lunch. Thank goodness I'll not be going back there for a while. WHEW!!! If that food didn't kill ya, it could make you sick. <gag> I honestly don't know how they can get away with food like that. ICK!
If there is anything I've missed telling you about, it will be in the next e-mail. LOL!!!
Take care,
Love,
Kathy
You haven't heard much from me lately. Between work and hleping out with Kathy... trips to doctors and hospitals there just hasn't been much time. Besides talking about her illness (leukemia) became so grueling and energy consuming that I just sort of clammed up about it.
Now.. she has completed three chemos and will be facing a bone marrow transplant at City of Hope at the Phoenix satellite the first week of May. This will require a one month hospitalization and then three months of house confinement.
Since November Kathy has been in the hospital in total isolation half the time... at three and four week stretches. About 45 days total.
We would like to take a quick vacation prior to the bone marrow transplant. We have 4-11 days. The budget is 3-5 thousand. I would like to limit our consideration to the Western Hemisphere including Alaska and Hawaii. Also, I prefer to be near water and we need to stay at a relatively low elevation.
Where would you go?
What I am seriously considering is Alaska, Hawaii and the Carribean.
Any ideas?
Any feedback would be appreciated.
I am including her last e mail as a new "update"
Thanks
AzRusty
Randy
4/13/02
Hi Everyone,
Well... I've been out of the hospital since Thursday, but spent all day Friday at Good Samaritan. Randy dropped me off at 8:00 A.M. and I was ready to be picked up at 7:00 P.M . What a long day. Friday was a "Hurry up and wait... Wait... WAIT" day. They had everything planned, appointments made and nothing went as planned. I was scheduled to go into surgery to have a "Hickman" put in at 10:00 A.M., but after my labs came back, they decided that my platelets were too low and they were going to have to transfuse me before they could do any cutting. After waiting for three hours for the blood bank to get the platelets in, and 1/2 hour to get them into me, they had to check my platelet count again before they could take me to surgery. After waiting for an hour for the lab to get my count we were able to get into surgery.
I went back this AM to have more labs taken. My white count was still too low to harvest stem cells, so they are going to wait and do it on Monday. I guess I get tomorrow off except for having to go to Del Webb Hopsital at 7:30 A.M. to get a Neupogen shot. They will continue to have me come in daily until they get the amount of stems cells that they want. Freezing and storing them can kill off some/all/many leukemic cells, if there are any present. Hopefully they will kill them ALL off and when I have the bone marrow transplant they will not be transplanting leukemic cells back into me. I will get a schedule for the actual bone marrow transplant. Right now, all we know is that they want to give me plenty of time to recover from my last chemo and harvest the stem cells.
I know you remember what a gorgeous rose garden I had out here. At one time I had over 100 roses that my Dad brought me. With the days and hours we have been working for years now, my beautiful rose garden is nothing except dry and dead patches of Bermuda grass. Everytime I'd walk outside I'd get upset, almost sick to my stomach seeing another dead or dying rose bush with weeds all around. While I was in the hospital this last time, Randy made arrangements with John next door to have 50 rose bushes planted!!! When we got home this afternoon, they were all planted! No... these will never replace the ones that my Dad gave me, but they will be every bit as gorgeous as the ones he brought me. What a nice husband! I need to let go of the past and focus on the present.
Randy knew I had a major problem with the hospital food so he had dinner with me almost every night while I was in the hospital. Some nights we had Kentucky Fried Chicken and another night it could be pizza, which was just fine with me. <oink> I finally learned to NOT eat anything that was cooked there at the hospital. I'd have toasted bagel/English Muffin for breakfast, a grilled cheese sandwich for lunch. Thank goodness I'll not be going back there for a while. WHEW!!! If that food didn't kill ya, it could make you sick. <gag> I honestly don't know how they can get away with food like that. ICK!
If there is anything I've missed telling you about, it will be in the next e-mail. LOL!!!
Take care,
Love,
Kathy
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